About the Center for Sickle Cell Disease Initiatives
Since 2015, ASH has collaborated with stakeholders to enhance access to care, prioritize meaningful research, and support global action. Recently, ASH launched the Center for Sickle Cell Disease Initiatives to further this commitment and streamline its programs for greater impact, ensuring sustainable improvements for those affected by SCD.
Clinical Practice Guidelines
ASH developed the 2019-2021 Clinical Practice Guidelines on Sickle Cell Disease using the GRADE methodology. These guidelines identify best practices for the management of SCD complications to improve the quality of care.
View The Guidelines
Sickle Cell Disease Advocacy
Since 2015, the Society has been dedicated to enhancing the outcomes for individuals living with Sickle Cell Disease. By collaborating with federal agencies, the U.S. Congress, and the U.S. Department of Health and Human Services, ASH continues to support various initiatives aimed at improving care and resources for those affected by SCD. View How ASH Supports SCD
SCD Research Priorities
ASH has developed a list of priorities that will serve as a crucial guide for SCD researchers over the next five years. These revised research priorities will drive progress towards advancing treatment and care.
ASH Research Collaborative
The ASH Research Collaborative (ASH RC) was developed in 2018 to foster collaborative partnerships and help improve the lives of people affected by blood diseases. The ASH RC developed the Data Hub and a SCD Research Network to collect key information and identify gaps to advance SCD research and treatment.
Consortium on Newborn Screening in Africa (CONSA)
ASH is focused on raising awareness of SCD globally by partnering with global organizations to build SCD-focused education. The Society founded the Consortium on Newborn Screening in Africa (CONSA) to demonstrate the benefits of newborn screening and early interventions for children with SCD in sub-Saharan Africa.
Sickle Cell Disease Coalition
The Sickle Cell Disease Coalition (SCDC) was formed to amplify the voice of the Sickle Cell Disease stakeholder community to improve outcomes for individuals with SCD.
